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Ever since 2020, there’s been a bit of a pink elephant sitting in the corner of the ME/CFS community. (heyyy who got you picturing a pink elephant? This gal. And now, with tap shoes! Ok, ok I'm stopping.)
And at the same time, there’s been a massive spotlight on that elephant in the world of medica...
 When the crawl between the bed and the toilet feels like Everest, the idea that you might ever live a normal life again seems impossible.
And yet, 5 years after I became severe with MECFS - I just booked a ticket to attend my friend’s wedding in Malaysia in September. (yassssss). I’ll be flying 1...
Today I'm tackling an issue that lands dead smack RIGHT in the center of MECFS; it is called the C-R-A-S-H.
I call them "wobbles" (for reasons we wont go into in this letter), but by whatever name we use, you know precisely what I'm talking about.
You can FEEL it coming on; it's a sudden loss of a...
If you have MECFS, you've probably heard of PEM — post-exertional malaise. PEM is the hallmark feature of ME/CFS, and one of the clearest ways clinicians distinguish it from other illnesses. PEM, as it is defined in ME/CFS, does not occur in other conditions in the same way.
However, the term post-...
