One of the most devastating aspects of ME/CFS is the complete loss of trust within your own body.

Before this illness, most of us had a kind of quiet, synergistic relationship with our bodies, where if you asked it to do something, it would do it.

There was a normal, expected relationship between ...

Today I'm tackling an issue that lands dead smack RIGHT in the center of MECFS; it is called the C-R-A-S-H.

I call them "wobbles" (for reasons we wont go into in this letter), but by whatever name we use, you know precisely what I'm talking about.

You can FEEL it coming on; it's a sudden loss of a...

Last night I was visiting with my niece and nephew as I roll through the Deep South. My brother’s kids are like my own, and I adore watching them grow into ever-increasingly magical humans. My nephew was so eager to show me his latest passion—hand-painting Warhammer figurines with tools almost invis...

One of the reasons I am so passionate about advocacy for ME/CFS awareness is because I know firsthand the way a lack of understanding from our loved ones can make this illness worse.

I’ve seen people recover without tangible, 3D, emotional support — even those living in isolation. I’ve also seen pe...

Everyday, I meet people with MECFS who all seem to share a universal frustration around the process of recovery. They've been working on it for a long, LONG time (sometimes months or even years) and they feel they've done EVERYTHING to get better, yet still feel completely stuck.

Then they see peop...

One of the hardest things about navigating my illness—and the recovery process—was learning how to wiggle my way out of my relationship with efforting.

For decades, I'd built an empire on efforting. 

I was a classic overachiever.

An over-doer.

A pusher of boundaries.

I loved the idea that I was...

This morning I was reviewing a list of all the recovery programs out there, and I noticed that most of them share a similar kind of name. Almost all of the titles focus on recovery, healing, reorientation or reprogramming. 

And then we have my program, The Edison Effect which doesn't seem to on ...

It read: In my last coaching cohort, I received a question that felt important enough to warrant its own newsletter. 

“How did you maintain belief in the recovery path you now teach, despite setbacks — especially when conventional medicine frames ME/CFS as irreversible damage rather than primary...

Last week, here in my blog, I did my best to illuminate the narrative around the confusion between trigger and cause. Hopefully by now you understand that while there is no one clear trigger of ME/CFS — there IS a clear cause of MECFS. (If you missed that post you can find it here: Why There is No O...

 So, there I was.. lying in bed in the dark in the middle of the day. It was the spring of 2021, though the seasons meant very little to me during that time. I was ankle deep in a FB group, struggling to look at the screen, when I came across the word pacing for the first time. 

I’d been undiagnose...

I've been working a lot this past month on Pillar 3 of recovery (supporting the body), focusing on things like nutrition, sleep, movement, and hormonal balance.

And by the way — yes, my recovery is an ongoing process of maintenance. The same tools I used to get well across the four pillars, are the...

 If you've been in the recovery space, and have had the capacity to pay attention, then you've probably noticed that recovery falls into "camps,” where groups or people sort of pedal an approach as the solution to MECFS.

These camps fall into:

1. Pacing Programs: (The main idea is that pacing is h...